Epilepsy – Conditional Publications http://conditionalpublications.com The Home for Writers with Neurological Conditions Sun, 25 Apr 2021 13:43:09 +0000 en-US hourly 1 https://wordpress.org/?v=4.7.29 http://conditionalpublications.com/wp-content/uploads/2012/09/cropped-ourfounder2-32x32.jpg Epilepsy – Conditional Publications http://conditionalpublications.com 32 32 Herbal or Pharmaceutical: Your Choice http://conditionalpublications.com/2011/02/23/herbal-or-pharmaceutical-your-choice/ http://conditionalpublications.com/2011/02/23/herbal-or-pharmaceutical-your-choice/#comments Wed, 23 Feb 2011 13:12:50 +0000 http://conditionalpublications.com/?p=699 Last week I read an article in the London Metro newspaper about the EU’s recent move to ban many herbal / Chinese remedies from being sold / promoted / practised in European countries.  The UK government have declined to participate in this movement, instead opting to institute a requirement that all such practitioners register themselves with a new regulatory body so that their activities can be monitored in case something dangerous does come up.

The article stated that there are many doctors up in arms over the UK’s decision, claiming this law basically says ‘quacks’ are okay.  A conflicting viewpoint was put across that really it ought to be the patient’s choice which sort of treatment they take, either herbal or pharmaceutical.  The article also noted that one such herbal remedy under contention is St John’s Wort, as used in the treatment of depression.

I think the key here is ‘choice’.  Last I checked, the US and UK supposedly invaded the Middle East under the pretense of bringing ‘democracy’, yes?  And I appreciate that a little government intervention is necessary from time to time, but when it comes to our health, shouldn’t it be up to us what we put in our bodies?

Example 1:

Many of my good friends have neurological conditions.  One such friend was diagnosed with Bipolar Disorder a couple years ago.  He tried prescribed medications for a while, but they only seemed to make him worse, so he stopped, and started exploring his options.  He struck upon a vitamin regime that did not cure his symptoms, but it did improve things greatly for him.  Unfortunately, by that point so much damage had already been done at his job, due to his condition going undiagnosed for so long and due to his colleagues being small-minded and not accepting / understanding him once the diagnosis was made.  My friend has been severely bullied at work for a long time now, and the abuse built up to a point where he just couldn’t handle it anymore.  He felt so low, he went back to the doctor, and in his vulnerable state, he agreed to try a new prescription.

He went on a course of Sertroline (Zoloft in the States) – something I took myself, many years ago, and which had greatly detrimental affects on my mental health.  In my experience, I was a guinea pig for this ‘miracle drug’, and when things went wrong, the doctors were suddenly uncontactable.  In my friend’s case,  he sank lower and lower over a period of six weeks, until one morning his partner found him slicing open his own wrists.  Thank God my friend does not live alone, else he would have died.  Instead, though, he was rushed to hospital and saved.

One could argue he was depressed anyway, so how can you say this was caused by the drug?  Except my friend has never been suicidal before – and if you look around the internet, you will see there are several class action suits being filed in connection with this and other such drugs due to unprecedented violent acts on the part of patients taking these prescriptions – and when I was taking the drug myself, after sinking into a suicidal state unlike anything I’d ever experienced before (not to mention developing schizophrenic symptoms), I read in the list of side effects contained in the medication box that this ‘anti-depressant’ and ‘anti-anxiety’ tablet could, in fact, cause ‘anxiety’ and ‘suicidal ideation’.

The day before my friend started self-harming, he had gone to see his doctor again and told him how depressed he was feeling since taking the drug.  The doctor’s reply was to increase the dosage!  And might I add that never was there any suggestion to see a psychologist who could help him work through his pain, even alongside the medication.  This, too, has been my own experience: unless I begged for a psychologist and absolutely insisted upon it, it was not given to me.

I’m not saying the drugs don’t work for everyone.  But I have spoken to many fellow diagnosees (if there is such a word!), read many books on these subjects, and have tried a variety of medications myself.  The general consensus seems to be that for some people these medications work – for others, it is helpful to take the drugs on a short-term basis alongside some other form of psychological therapy, so that they feel a boost in spirits and clarity to enable them to focus on the therapy and learn the long-term techniques to help themselves.  For others still (myself included), the drugs do not have any affect on the actual condition, but they do induce a lot of nasty side effects.

Another point to mention is that I believe we focus so much on the diagnosis, we forget about the ‘little’ things, like sleep and diet.  For instance, I have started on a vitamin regime (similar to my friend’s) that has meant at long last, I sleep at night and I wake up refreshed.  This has in no way cured my symptoms – but just getting that sleep has de-stressed my body and mind so much, my symptoms have become much more bearable.  I also tried a year of talking therapy and discovered that much of the pain and volatility within me was due to experience, not the diagnosed conditions themselves.  Through this therapy, much of my frustration and unhappiness was healed.

The point is: it should be our choice.  I don’t know about you, but I do not want to live in a nation governed by people who decide what we’re allowed to put into our bodies in the name of health.  There is a reason these chemical compounds are called ‘drugs’ – they have the potential to be dangerous, depending on who takes them and for how long.

I think people often view doctors as all-knowing, but it’s so important that we step back and remember the human body is not a machine.  You can’t call up Tech Support when something goes wrong, have them run a few diagnostic checks and come out with a foolproof solution.

Example:

Just last year I developed some kind of infection that required antibiotics.  I was given a basic prescription, and within 15 minutes of taking the drug as prescribed, my temperature shot up to 105F, I lost feeling in the right side of my body and my chest started seizing up.  I was in absolute terror.  My husband threw warm wet flannels over me to bring down the temperature, and slowly I came back to health.  We spoke to a nurse who said it was a result of the drug, because apparently you shouldn’t take that particular pill if you have neurological conditions – which no one bothered to check when giving the prescription.  I spoke to a doctor who prescribed a new drug and his response was, ‘There’s nothing wrong with the antibiotic – that should not have happened to you.’  Yes, but it did happen.  But he just kept saying, ‘It shouldn’t have.’

Doctors do not have all the answers, despite how advanced they are.  They particularly do not have all the answers when it comes to the brain.  I would also argue there is a huge issue of spirit involved, when delving into matters of the psyche, i.e. some scientists believe everything is down to chemical reactions, and others believe there’s something more to it, something beyond the body.  There’s no way to prove it either way.

So do I think the UK government has just said it’s okay for ‘quacks’ to practise in our nation?  No.  I believe they just reaffirmed our right to choose – which is just how things should be in a so-called democracy.

I just pray we keep it that way.

Vrinda Pendred

Editor & Founder

]]> http://conditionalpublications.com/2011/02/23/herbal-or-pharmaceutical-your-choice/feed/ 1 Proposed changes to upcoming DSM-V: have your say! http://conditionalpublications.com/2010/02/11/proposed-changes-to-upcoming-dsm-v-have-your-say/ http://conditionalpublications.com/2010/02/11/proposed-changes-to-upcoming-dsm-v-have-your-say/#comments Thu, 11 Feb 2010 13:02:53 +0000 http://conditionalpublications.com/?p=188 The Diagnostic & Statistical Manual of mental disorders (DSM) is soon to be released in its fifth revision.  Before its publication, however, the public apparently have a say in the proposed revisions.

Included in the proposal is the combination of all autistic disorders into one single entry for Autistic Spectrum Disorders – as well as the consolidation of certain psychotic conditions, and a new category for Psychosis Risk, intended to help treat patients earlier rather than once the problems have overtaken them.  There will be rules enstated in order to prevent overdiagnosis…so they say.

I happen to think in some ways this is a step in the right direction, because the DSM was becoming cluttered with 1,001 different disorders when many of them seem to be aspects of the same few things.  Having a risk category could possibly be useful, too – particularly for people who are trying to understand extra symptoms they may have without having a full-blown condition.

The obvious worry, though,  is that doctors may distort this and start prescribing drugs to people who really don’t need them and can get on fine in life without them.  It’s possible that we don’t need a new diagnosis for such things, but rather more public awareness of the truth that most people probably share some of these symptoms without even thinking about it.

They are also proposing to revamp the whole personality disorders section.  Reading their suggested amendments, it seems a good move.  It feels clearer and less extreme, allowing room for the notion that people with such conditions are human, like anyone else – fancy that!

You can read more about the changes in the Scientific American article, and whatever your view on the matter, please do get involved here.

Vrinda Pendred
Editor & Founder of Conditional Publications

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Considering medication? Be informed, first – especially in America http://conditionalpublications.com/2010/01/22/considering-medication-be-informed-first-especially-in-america/ http://conditionalpublications.com/2010/01/22/considering-medication-be-informed-first-especially-in-america/#respond Fri, 22 Jan 2010 16:44:07 +0000 http://conditionalpublications.com/?p=174 As someone who took various medications for three years and experienced SEVERE side effects that have emotionally scarred me even ten years on…and the drugs didn’t even work (!)…and as someone who instead went the psychology/therapy route and tried to understand more about myself and my difficulties, to come to a point of acceptance and learn to live with them and take control of myself…

I proudly present ‘Our Daily Meds’ by Melody Peterson.  This book exposes all the pharmaceutical industry horror stories I’m sure many of us are aware of, but in graphic detail we often turn a blind eye to because, well, it’s terrifying.

I heard about this on Madness Radio, when they interviewed the author – it seems an invluable book to look at, if we ever hope to overcome the pharmaceutical grip on today’s Western approach to health.  For more information, view the book on Amazon, or try listening to the interview on Madness Radio – a free podcast accessible via iTunes.

Vrinda Pendred
Editor & Founder of Conditional Publications

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