Comments on: Tourette’s – Diet & Vitamin Regimes http://conditionalpublications.com/2017/09/13/diet-and-vitamins-for-tourettes/ The Home for Writers with Neurological Conditions Sat, 22 Aug 2020 21:16:49 +0000 hourly 1 https://wordpress.org/?v=4.7.29 By: Vrinda Pendred http://conditionalpublications.com/2017/09/13/diet-and-vitamins-for-tourettes/comment-page-1/#comment-10389 Sat, 22 Aug 2020 21:16:49 +0000 http://conditionalpublications.com/?p=2425#comment-10389 Thank you for your note. Sadly, my GP / the neurology department where I lived were very disinterested in the experience and had no time for ‘alternative’ therapies such as nutritional supplements. If I went to a private practitioner, I’m certain the experience would be different, but this was the NHS and not well-equipped to look into it at that depth.

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By: Vrinda Pendred http://conditionalpublications.com/2017/09/13/diet-and-vitamins-for-tourettes/comment-page-1/#comment-10388 Sat, 22 Aug 2020 21:15:15 +0000 http://conditionalpublications.com/?p=2425#comment-10388 I didn’t find relief from it in the end, no. The full flush form at a very high (dangerously high) dose did work, but I couldn’t repeat the experience or it might have killed me, so please do NOT try it yourself. The non-flush kind didn’t make any bit of difference to me, so it felt like a waste of money for me.

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By: S http://conditionalpublications.com/2017/09/13/diet-and-vitamins-for-tourettes/comment-page-1/#comment-10111 Sun, 22 Dec 2019 02:45:30 +0000 http://conditionalpublications.com/?p=2425#comment-10111 I am confused. Did you find continued relief from the niacin or not? Sounds like not? Or you decided not to take it again? Thank you. Looking for help for my dd

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By: Ben http://conditionalpublications.com/2017/09/13/diet-and-vitamins-for-tourettes/comment-page-1/#comment-10004 Sun, 18 Aug 2019 23:55:23 +0000 http://conditionalpublications.com/?p=2425#comment-10004 Hello Vrinda,

Thank you for sharing your story. I am a medical doctor and I frequently browse the internet looking for anecdotes offered by people relating to their response to treatments, particularly vitamin/diet-based.

Regarding niacin. I do hope, perhaps, that you’ve reviewed your experience with your personal physician. As you noted in your article, physicians do routinely advise people to “start low, go slow” in titrating up the niacin dose. In short, you should expect to be able to restart and ultimately increase the niacin dose until you reach success regarding at least the tics (but do review with your health provider).

Best of luck,
Ben, MD

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