Diagnosing Tourette's in Kenya - A Personal StoryI have a 9-year-old son who was recently diagnosed with Tourette’s Syndrome. We are from Nairobi, Kenya. It took the earth to correctly diagnose this condition, as nobody in Kenya seems to know about it.

After seeing 13 doctors, doing a myriad of tests and being given several different diagnoses, we were forced to travel to the US for further diagnosis. On reaching the US Neurologist’s office, we were properly diagnosed within the first 5 minutes!

Our story is really one of the journey to discovering Tourette’s and managing an unknown condition in a country where there is limited support for ‘rare diseases’, as well as keeping the faith that we will all come out of this situation stronger and victorious over things that would otherwise cripple a family!

Editor’s Comment: Thank you so much for sharing this with us.  I think we in the ‘Western world’ probably take it for granted that we have access to doctors who recognise such conditions.  I wish you and your son the best of luck!  I have Tourette’s myself and know how hard it can be, but I like to think I turned out just fine in the end 🙂  Your son will, too!

If you have a story to share, please contact us here. We don’t mind if your story is inspirational or simply a way of getting things off your chest.  We proofread all stories, but we censor nothing.  And if you want to make sure you don’t miss out on the stories other brave people share with us, be sure to click the ‘Subscribe’ button at the top-right of this page.

 

READ MORE  When Life Throws You Curve Balls... (A Personal Account of Tourette Syndrome)

Leave a Reply

Your email address will not be published. Required fields are marked *

You may use these HTML tags and attributes:

<a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <s> <strike> <strong>