Jan
05

Dystonia links

By Vrinda Pendred

Some links to informative and/or supportive websites about Dystonia:

The Dystonia Society

Dystonia Medical Research Foundation

Wikipedia’s Entry on Dystonia

We Move – Worldwide Education and Awareness for Movement Disorders

Categories : Dystonia, Resources

Comments

  1. Hi,

    My name is Richard Stewart, and I work at the Tardive Dyskinesia Center (tardivedyskinesia.com). I was searching through a number of health sites when I came across your website, and was very impressed by the information you have listed. We provide educational information on tardive dyskinesia, a movement disorder caused by the medication Reglan.

    Tardive Dyskinesia (TD) is a result of damage to the bodily systems that process dopamine, and is typically caused by exposure to certain neurological medications – including Reglan. The symptoms of TD, which are irreversible and incurable, mimic those of Parkinson’s disease. Tardive Dyskinesia victims suffer from involuntary, repetitive movements which often continue after the drug is no longer used. We feature the most up-to-date information on TD, its causes and all known treatment options. Additionally, we distribute free support books and informational packets to our users.

    The best treatment is prevention. Right now we are in the midst of a public outreach, attempting to educate families on the dangers of Reglan. I noticed you already have some other medical resources listed on your resources page at http://conditionalpublications.com/2010/01/05/dystonia-links/ and thought you might be willing to include our organization as well. I’m available by e-mail at bleer(@)tardivedyskinesia.com. With your help, we can educate the public about the dangers of Reglan. Thanks again!

    Sincerely,

    Richard Stewart
    National Awareness Coordinator
    800-584-6601

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